Alport's Syndrome is the second most common inherited cause of kidney failure. Most people with Alport's
Syndrome develop kidney failure in early adult life - usually in their twenties or thirties - but it can
develop at a much earlier age. Because of the way in which it's inherited, Alport's is more common
among males than females and can lead to deafness and sight problems.
Deborah Fielding, the founder of Action for Alport's Campaign, knows only too well the heartache Alport's
Syndrome can bring to the families affected by this rare and potentially fatal genetic disease. Deborah's
family have been troubled with kidney disease as far back as she can remember. Deborah herself has seen her father pass
away waiting for his second transplant and has borne witness to the doctor diagnosing her son Oscar with
the same genetic kidney disorder.
"Working with Kidney Research UK, the Action for Alport's Campaign looks to break through this rare
kidney disease by conducting dynamic research to control its effects to banish it to the
wilderness where it belongs. Through research, we can look to find a cure and help future generations
by making Alport's a thing of the past. At the moment, there is no current dedicated funding for any research
into Alport's Syndrome - a disease that affects many families across the UK, including my own."
Deborah Fielding, founder Action for Alport's Campaign
You can help us give Alport's syndrome the attention it deserves by donating as much as you can to fund
pioneering research into this rare disease. All donations made by you go directly to the tampaign.
"We are so very grateful for your support.